Pete Huckle

Patient Stories

"Now I’ve been to see the Lion King in London, I feel like the circle is complete, it’s the end of this chapter and I’m so grateful to LOROS for helping to make this happen."

Four-and-a-half years ago, I was watching the stage version of Lion King in London. I remember feeling extremely poorly; my neck was swollen, I was feeling lethargic and this ended up ruining the show for me. The next day, I text Vikki, my best friend who I had been to the show with, saying ‘I think I’m dying’ because I felt so dreadful. She replied telling me I wasn’t dying and I had man flu. By 4pm on the Monday, I had been diagnosed with Leukaemia and told I would’ve been dead in two weeks if I had not have gone to the doctor. I’ve never let Vikki live that message down.

I started chemotherapy straight away and not long after had a bone marrow transplant. Since then, nothing has been right, I think I’ve had a problem with almost every organ in my body. I was also told I could never have children, which absolutely crushed me.

At the end of 2017, I started having breathing issues. At first we couldn’t identify what they were but it turns out, my immune system is basically attacking my body. To cut a long story short, at the time of writing this, I have around 20 per cent of my lung capacity left, hence, why I permanently need extra oxygen.

I came into LOROS as an inpatient on Saturday 13th July, although I’ve been attending the Hospice’s Day Therapy for around a year now.

I was hoping to come in with a chest infection, perhaps something that could be reversed but it hasn’t panned out that way.

My lungs have recently taken a turn for the worse, which has forced me to withdraw my university application; I’ve always been a chef and was hoping to study a food-related course at a higher level. I had a vision of becoming a lecturer, even if I had to be in a wheelchair, teaching others and sharing my knowledge. Unfortunately, my health has taken that away from me too. That was heart-breaking, absolutely spirit crushing.

So I needed something to look forward to. My LOROS home visiting volunteer, Polly, who I have been seeing regularly for a while now had applied for a grant for me, through another charity, The Jonathon Hodge Foundation, which would enable me to tick something off my bucket list before I die. That something, was to be going to see the Lion King again; and this time, I planned on enjoying myself.

I feel like going to the production was the closure I needed. LOROS helped make that happen and it’s just amazing.

I mentioned the idea to the team at LOROS, in particular, the physiotherapist who has been supporting for me and she really wanted to help. Within a matter of days, the trip had been organised, a volunteer driver had agreed to take me down and I was to meet Vikki in London, so we could relive our ruined trip from four years ago.

The day will be one I will remember forever. Ironically, even though I was so much more poorly now than I was then, the day was so much better than the one I remember four years ago. Our seats were right in front of the stage, so we had a clear view of the perfect production. We enjoyed a glass of prosecco during the interval, Vikki bought me a t-shirt and I bought her a Simba cuddly toy – something I haven’t let go of since. It really was a very special day; emotional but very special.

Seeing the counsellor has been very good, they’ve broken things down for me and given me a different perspective on life.

I feel like going to the production was the closure I needed. LOROS helped make that happen and it’s just amazing. I’m overwhelmed it happened and how it happened. I’ve written cards to all of those involved, which is the least I can do.

I’ve also been having counselling, which has been invaluable. Seeing the counsellor has been very good, they’ve broken things down for me and given me a different perspective on life. I see a consultant here too and of course the enablement team.

I came into LOROS three weeks ago and I feel safe here. If things get better, then great but if they don’t, I know LOROS is the right place to be.

More articles

See all news

Patient Stories

26th August

Fiona's story

"My mum, Ros Sherwin, was a district nurse. In May 2020, when she was 61, she went for a scan at Glenfield Hospital, and out of the blue she was told she had stage 4 lung cancer. It was a terrible shock."

Patient Stories

21st August

Emma's story

"Considering she couldn't talk anymore, the nurses were still able to have a chat with her about her wishes, her family, her childhood and her favourite hobby which was gardening. It didn't matter that it took her a while to write down what she wanted to say, everyone gave her the time to be able to do this."

Patient Stories

27th June

Sharon's Story

“It was like walking into a hotel and the care and the warmth was incredible. I immediately felt so comfortable and so did Baz, they took such good care of us.”

LOROS, Groby Road, Leicester LE3 9QE