Research at LOROS

LOROS aims to improve care for patients and their families by undertaking research. We work collaboratively with patients, their family and friends and health and social care practitioners.

These pages may feature medical and research terminology and subjects of a sensitive nature. We hope however, that anyone who is interested in research at LOROS will find them useful and we’d welcome your feedback


The research themes that we focus on are:

Personalised Care: Communication and Decision-making

  • Supporting people from ethnically diverse backgrounds
  • Communication practices and decision-making.

Symptom Management in Advanced Illness

  • Assisted ventilation and the end of life
  • Anxiety management in breathlessness of advanced illness

Palliative Care for Older People

  • Personalised care for deteriorating care home residents
  • Supporting family carers

All our research is informed by discussions with patients and carers. If you would like to be part of this we would like to hear from you.

We work in close partnership with the University of Leicester and with research teams from many other Universities and NHS organisations, locally and nationally.

We welcome being part of new projects that will improve the care of patients and families and the skills of staff that support them.

I feel like the circle is complete, it’s the end of this chapter and I’m so grateful to LOROS for helping to make this happen.


The support from LOROS went way beyond what I expected. It really kept me going.



What’s happening?


Research newsletters

Read the latest research updates in palliative care


Muslim perspectives on end of life care

On 21st February 2022 Dr Mehrunisha Suleman, Director of Medical Ethics and Law Education at the University of Oxford, gave a powerful talk about Muslim Values and End of Life healthcare decision-making.  There are 2.7 million Muslims living in the UK and there is going to be a doubling of those over 65 years of age in the next decade or so.  Little is known about their views on end of life and/or end of life care services.


A Good Death in Dementia

On 3rd February 2021 Dr Karen Harrison-Dening gave a very interesting and impactful annual LOROS lecture, 'A Good Death in Dementia'. The event was attended on our ECHO Zoom platform by 85 people. Karen Agreed to share her slides and you can watch the video using the link below.


Thinking Ahead

Our research project, 'Thinking Ahead: Exploring and understanding experiences and decisions in end of life care planning with patients and families from Black, Asian and Minority Ethnic backgrounds', has started. It's been kindly funded by the National Institute of Health Research.


Work at LOROS posters

7 posters about work at LOROS were presented at the Hospice UK conference.


Thinking Ahead about Medical Treatments in Advanced Illness

Senior research fellow Dr Zoebia Islam presented 'Thinking Ahead about Medical Treatments in Advanced Illness: the complexities of supporting diverse communities in Leicestershire'.


Recent findings



LOROS' Marjolein Cleaver shared the findings of our EVOLVE project at the Allied Professionals Forum in Glasgow recently. This was an 18-month project, funded by Hospice UK, to support patients with Motor Neurone Disease to engage in meaningful activity in their own homes.


Public opinions on: Resuscitation

Discussions about resuscitation in advanced illness: What are the public’s views?


The Continuing Bonds project

The Continuing Bonds project exploring where archaeology meets palliative care was presented at the palliative care conference in March 2018.


Discussions about Dying

Engaging Terminally Ill Patients in End of Life Talk: How Experienced Palliative Medicine Doctors Navigate the Dilemma of Promoting Discussions about Dying


I never knew that

I never knew that!: Why do people from Black and Asian Minority ethnic groups in Leicester, access hospice services less than other groups?


Withdrawing non-invasive ventilation

The issues for doctors involved with withdrawing non-invasive ventilation at the request of a patient with MND


Volunteers in care homes

Volunteers in care homes - a service that makes a difference

View our research newsletters


Did you know: we offer a wide range of training in end of life care and leadership courses

LOROS, Groby Road, Leicester LE3 9QE