Our communication practices
LOROS collaborates with Professor Ruth Parry to develop an evidence base about communication practices in discussions with patients and family members with serious illness. Real Talk, a training resource for health professionals, is a key output from this work.
There are a number of very useful blogs and ‘in a nutshell’ summaries available on the Real Talk website.
Land V, Parry R, Pino M, Jenkins L, Feathers L,Faull C. Addressing possible problems with patients’ expectations, plans and decisions for the future: one strategy used by experienced clinicians in advance care planning conversations. Patient Education and Counselling 2019; 102; 670-679
Pino, M. Parry, R. Feathers, L. and Faull, C. (2017) ‘Is it acceptable to video-record palliative care consultations for research and training purposes?' A qualitative interview study exploring the views of hospice patients, carers and clinical staff’, Palliative Medicine, pp. 1-9. DOI: 10.1177/0269216317696419
Pino, M. Parry, R. Land, V. Faull, C. Feathers, L. Seymour, J. (2016). Engaging terminally ill patients in end of life talk: How experienced palliative medicine doctors navigate the dilemma of promoting discussions about dying. PLoS ONE 11(5): http://dx.doi.org/10.1371/journal.pone.0156174
This project looks at how archaeology can inform our current attitudes to death and dying and whether the diverse methods of dealing with death and the dead uncovered by archaeologists can bring a different perspective and contribute towards a necessary re-examination of today's taboo status of death as an inevitable human experience.
Visit the Continuing Bonds project website for more information and for access to Blogs from the research team.
Croucher K, Green L, Buster L, Dayes J, Faull C. Archaeology and contemporary death: Using the past to provoke, challenge and engage. PLoS ONE 15(12): e0244058 https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0244058
Dayes J, Croucher K, Buster L, Faull C, A Poem Evidencing the Value and Relevance of Archaeology to Professionals Working in End-of-Life Care. BMJ SPC Rejected as article. http://dx.doi.org/10.1136/bmjspcare-2017-001452.
Büster L, Croucher K, Dayes J, Green L, Faull C. From Plastered Skulls to Palliative Care: What the Past Can Teach Us About Dealing with Death. Public Archaeaology 2018: Special volume Death in the Contemporary World: Perspectives from Public Archaeology 3: 249-276
In our work we are exploring, from the perspective of the patient, their health professionals and close family the issues related to using ventilation and to its withdrawal of at the request of a patient with MND.
Phelps, K., Regen, E., Oliver, D., McDermott, C. and Faull, C. (2015). Withdrawal of ventilation at the patient's request in MND: a retrospective exploration of the ethical and legal issues that have arisen for doctors in the UK. BMJ Supportive & Palliative Care, pp.bmjspcare-2014-000826.
Withdrawal of Assisted Ventilation at the Request of a Patient with Motor Neurone Disease: Guidance for Professionals. Version 1.0 November 2015. Association for Palliative Medicine of Great Britain and Ireland: http://apmonline.org/publications/
Distressing symptoms are quite common in the last days of life and their management needs prompt administration of medications delivered by injection.
We have undertaken two studies to identify and explore the issues that arise in relation to the prescribing and use of subcutaneous ‘Just-in-Case’ medicines (midazolam and diamorphine) for dying patients.
Our first study with health care professionals is complete and was cited as evidence in the NICE Guideline NG31 2015.
Our second study with bereaved family members is in press. You can see a poster of some of the findings here.
Faull C, Windridge K, Ockleford E, Hudson M 2013. Anticipatory prescribing in terminal care at home: what challenges do community health professionals encounter? BMJ Supportive and Palliative Care 3:91-97.