Publications

A selection of publication of our research work

RESEARCH AT LOROS

Publications based on our four key research themes amongst others

Communication practices and decision-making

Croucher K, Green L, Buster L, Dayes J, Faull C. Archaeology and contemporary death: Using the past to provoke, challenge and engage.  Plos One 2020 https://journals.plos.org/plosone/article/comments?id=10.1371/journal.pone.0244058

Land V, Parry R, Pino M, Jenkins L, Feathers L,Faull C. Addressing possible problems with patients’ expectations, plans and decisions for the future: one strategy used by experienced clinicians in advance care planning conversations. Patient Education and Counselling 2019; 102; 670-679

Dayes J, Croucher K, Buster L, Faull C, A Poem Evidencing the Value and Relevance of Archaeology to Professionals Working in End-of-Life Care. BMJ SPC http://dx.doi.org/10.1136/bmjspcare-2017-001452. Available online: https://spcare.bmj.com/content/early/2018/09/22/bmjspcare-2017-001452

Büster L,  Croucher K, Dayes J, Green L, Faull C. From Plastered Skulls to Palliative Care: What the Past Can Teach Us About Dealing with Death.  Public Archaeaology 2018: Special volume Death in the Contemporary World: Perspectives from Public Archaeology 3: 249-276

Archer, W. Latif, A. Faull, C. (2017) ‘Communicating with palliative care patients nearing the end of life’, The Pharmaceutical Journal, 7897(298), pp.39-43.

Pino, M. Parry, R. Feathers, L. and Faull, C. (2017) ‘Is it acceptable to video-record palliative care consultations for research and training purposes?' A qualitative interview study exploring the views of hospice patients, carers and clinical staff’, Palliative Medicine, pp. 1-9. DOI: 10.1177/0269216317696419

Whittaker, B. Parry, R. Bird, L. Watson, S. Faull, C. (2017). Development, validity and reliability testing of the East Midlands Evaluation Tool (EMET) for measuring impacts on trainees’ confidence and competence following end of life care training. BMJ Supportive & Palliative Care. doi: 10.1136/bmjspcare-2016-001100

Pino, M. Parry, R. Land, V. Faull, C. Feathers, L. Seymour, J. (2016). Engaging terminally ill patients in end of life talk: How experienced palliative medicine doctors navigate the dilemma of promoting discussions about dying. PLoS ONE 11(5): http://dx.doi.org/10.1371/journal.pone.0156174

Parry, R. Pino, M. Faull, C. and Feathers, L. (2016). Acceptability and design of video-based research on healthcare communication: Evidence and recommendations. Patient Education and Counseling.

Parry, R. Pino, M. Faull, C. Feathers, L. Seymour, J. (2015) Evidence-based guidance for the design of video-based research. Society of Research in Rehabilitation. 29(10) pp. 1013-1024.

Phelps, K., Regen, E., Oliver, D., McDermott, C. and Faull, C. (2015). Withdrawal of ventilation at the patient's request in MND: a retrospective exploration of the ethical and legal issues that have arisen for doctors in the UK. BMJ Supportive & Palliative Care, pp.bmjspcare-2014-000826.

Feathers, L., DeCaestecker, S., Norrie, P., Fowler, J. and Faull, C. (2014). Developing skills in communication in end of life care: evaluation of a 3 day pilot course for core medical training. BMJ Supportive & Palliative Care, 4(Suppl 1), pp.A38-A38.

Parry, R., Faull, C. and Feathers, L. (2014). Views of hospice staff, patients and their significant others on video-recording consultations for use in research and teaching. BMJ Supportive & Palliative Care, 4(Suppl 1), pp.A2-A3.

Pal, L., Dixon, R. and Faull, C. (2014). Utilising feedback from patients and their families as a learning strategy in a Foundation Degree in palliative and supportive care: A qualitative study. Nurse Education Today, 34(3), pp.319-324.

Tyrer, F., Williams, M., Feathers, L., Faull, C. and Baker, I. (2009). Factors that influence decisions about cardiopulmonary resuscitation: the views of doctors and medical students. Postgraduate Medical Journal, 85(1009), pp.564-568.

Feathers, L. Faull, C. Tyrer, F. Williams, M. Baker, I. (2009). Resuscitation decisions among hospital physicians and intensivists. Clin Med (Lond) 9(3):298.

Book Chapters

Pilsworth, A. and Geary, M. 2016. Principles of Effective Communication. In: Ingleton, C. and Larkin, P. eds. Palliative care nursing at a glance. Wiley-Blackwell. pp.6-7.

Diversity and disadvantage

Islam, Z. Markham, S. Faull, C. (2015). Raising the profile of palliative care services for BAME groups within Leicester city: Challenges with recruiting and training volunteers. Journal of Diversity and Equality in Health and Care. 12(3) pp. 116-123.

Markham, S. Islam, Z. Faull, C. (2014). I never knew that!: Why do people from Black and Asian Minority ethnic groups in Leicester, access hospice services less than other Groups? A discussion with community groups. Diversity and Equality in Health and Care, 11(3-4), 2014, pp.237-245.

Lord, K., Mitchell, A., Ibrahim, K., Kumar, S., Rudd, N. and Symonds, P. (2012). The Beliefs and Knowledge of Patients Newly Diagnosed With Cancer in a UK Ethnically Diverse Population. Clinical Oncology, 24(1), pp.4-12.

Lord, K., Ibrahim, K., Kumar, S., Rudd, N., Mitchell, A. and Symonds, P. (2012). Measuring Trust in Healthcare Professionals—A Study of Ethnically Diverse UK Cancer Patients. Clinical Oncology, 24(1), pp.13-21.

Kai, J., Beavan, J. and Faull, C. (2011). Challenges of mediated communication, disclosure and patient autonomy in cross-cultural cancer care. Br J Cancer, 105(7), pp.918-924.

Islam, Z. (2008). Negotiating identities: the lives of Pakistani and Bangladeshi young disabled people. Disability & Society, 23(1), pp.41-52.

Kai, J., Beavan, J., Faull, C., Dodson, L., Gill, P. and Beighton, A. (2007). Professional Uncertainty and Disempowerment Responding to Ethnic Diversity in Health Care: A Qualitative Study. PLoS Med, 4(11), p.e323.

Fazil, Q., Wallace, L., Singh, G., Ali, Z. and Bywaters, P. (2004). Empowerment and advocacy: reflections on action research with Bangladeshi and Pakistani families who have children with severe disabilities. Health Soc Care Community, 12(5), pp.389-397.

Bywaters, P., Ali, Z., Fazil, Q., Wallace, L. and Singh, G. (2003). Attitudes towards disability amongst Pakistani and Bangladeshi parents of disabled children in the UK: considerations for service providers and the disability movement. Health Soc Care Community, 11(6), pp.502-509.

Fazil, Q., Bywaters, P., Ali, Z., Wallace, L. and Singh, G. (2002). Disadvantage and Discrimination Compounded: The experience of Pakistani and Bangladeshi parents of disabled children in the UK. Disability & Society, 17(3), pp.237-253.

Ali, Z., Fazil, Q., Bywaters, P., Wallace, L. and Singh, G. (2001). Disability, Ethnicity and Childhood: A critical review of research. Disability & Society, 16(7), pp.949-967.

Book chapters

Thakker, D. and Faull, C. 2006. At the Coal Face: Improving Communication and Access to Palliative Care. In: Gatrad, A.J. and Sheikh, A. ed., Palliative Care for South Asians, Hindus, Muslims and Sikhs. London: Quay Books.

Faull, C. Beavan, J. Kai, J. 2005. Culture and Cancer. In: Kai, J. ed. PROCEED Professionals Responding to Ethnic Diversity and Cancer. London: Cancer Research UK.

Beavan, J. Kai, J. Faull, C. 2005. Working with uncertainty. In: Kai, J. ed. PROCEED Professionals Responding to Ethnic Diversity and Cancer. London: Cancer Research UK.

Faull, C. 2003. Cancer and Palliative Care. In: Kai, J. ed., Ethnicity, Health and Primary Care. Oxford: Oxford University Press.

Symptom management in advanced illness

Pollock K, Wilson E, Caswell G, Latif A, Caswell A, Avery A, Anderson C, Crosby V, Faull C. Managing Medicines for Patients with Serious Illness being Cared for at Home.  A qualitative study.  HS&DR 15/70/101 March 2021

Faull C, Wenzel D. Mechanical ventilation withdrawal in motor neuron disease: an evaluation of practice. BMJ Support Palliat Care. 2020 May 21:bmjspcare-2019-002170. doi: 10.1136/bmjspcare-2019-002170. Epub ahead of print. PMID: 32439630.

Wilson E, Caswell G, Latif A, Anderson C, Faull C, Pollock K. An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. BMC Palliat Care. 2020 May 11;19(1):66. doi: 10.1186/s12904-020-0537-z. PMID: 32393231; PMCID: PMC7216477.

Latif A, Faull C, Ali A, Wilson E, Caswell G, Anderson C, Pollock K. Caring for palliative care patients at home: medicines management principles and considerations. Pharmaceutical Journal June 2020 https://www.pharmaceutical-journal.com/cpd-and-learning/learning/caring-for-palliative-care-patients-at-home-medicines-management-principles-and-considerations/20207954.article?firstPass=false

Turner m, Faull C, Mcdermott C, Nickol AH, Palmer J, Talbot K. Tracheostomy in motor neuron disease.  Practical Neurology 2019;

Withdrawal of Assisted Ventilation at the Request of a Patient with Motor Neurone Disease: Guidance for Professionals. Version 1.0 November 2015. Association for Palliative Medicine of Great Britain and Ireland: http://apmonline.org/publications/

Oliver D and Faull C. (2013). Non-invasive ventilation in amyotrophic lateral sclerosis/motor neurone disease. Minerva Pneumologica. 52(1) pp.27-38. Online ISSN 1827-1723

Faull, C., Rowe Haynes, C. and Oliver, D. (2013). Issues for palliative medicine doctors surrounding the withdrawal of non-invasive ventilation at the request of a patient with motor neurone disease: a scoping study. BMJ Supportive & Palliative Care, 4(1), pp.43-49.

Faull, C., Windridge, K., Ockleford, E. and Hudson, M. (2012). Anticipatory prescribing in terminal care at home: what challenges do community health professionals encounter?. BMJ Supportive & Palliative Care, 3(1), pp.91-97.

Hirsch, C., Marriott, J. and Faull, C. (2012). Influences on the decision to prescribe or administer anticholinergic drugs to treat death rattle: A focus group study. Palliative Medicine, 27(8), pp.732-738.

Books

Faull, C., De Caestecker, S., Nicholson, A. and Black, F. (2012). Handbook of Palliative Care. New York: Wiley. (First edition Awarded BMA Primary Health Care section winner and overall Medical Book of the Year 1999)

Faull, C. Woof, R. (2002). Palliative Care: An Oxford Core Text. Oxford University Press. (Awarded BMA Medicine section joint winner and overall Medical Book of the Year 2003)

Book chapters

Faull C . 2018. End of Life care and non-invasive ventilation.  In:  Non-Invasive Ventilation and Weaning,  Principles and Practice, Second Edition. Eds. Mark Elliott, Stefano Nava, Bernd Schönhofer, CRC Press.

Feathers, L. Faull, C. 2012. Transdermal opioids. In: Forbes, K. ed. Opioids in Cancer Pain. Oxford: Oxford University Press.

Palliative care for older people

Owen RK, Conroy SP, Taub N, Jones W, Bryden D, Pareek M, Faull C, Abrams KR, Davis D, Banerjee J. Comparing associations between frailty and mortality in hospitalised older adults with or without COVID-19 infection: a retrospective observational study using electronic health records. Age Ageing. 2020 Jul 17:afaa167. doi: 10.1093/ageing/afaa167. Epub ahead of print. PMID: 32678866; PMCID: PMC7454252.

Supporting family carers

Poultney, J., Wiseman, F., Waterhouse, E. and Faull, C. (2012). The impact on bereaved carers of being involved in medical student education. Palliative Medicine, 26(2), pp.185-186.

Other publications

Clipsham, L., Islam, Z. and Faull, C. (2015). Experiences of hospice inpatient nurses in supporting children before the death of a parent. International Journal of Palliative Nursing, 21(9), pp.453-459.

Wale, J., Arthur, A. and Faull, C. (2013). An analysis of knowledge and attitudes of hospice staff towards organ and tissue donation. BMJ Supportive & Palliative Care, 4(1), pp.98-103.

Lymphoedema

Wilkins, C. Swain, G. Cooke, C. (2014) Facing up to the obesity crisis: outcomes of a bariatric lymphoedema clinic. Journal of Lymphoedema. 9(2), pp. 27–29.

Morgan, P., Murray, S., Moffatt, C. and Honnor, A. (2011). The challenges of managing complex lymphoedema/chronic oedema in the UK and Canada. International Wound Journal, 9(1), pp.54-69.

Honnor, A. (2009). Understanding the management of lymphoedema for patients with advanced disease. Int J Palliat Nurs, 15(4), pp.162-169.

Honnor, A. (2009). The information needs of patients with therapy-related lymphedema. Cancer Nursing Practice 8(7): pp.21-26.

Honnor, A. (2008). The management of chronic oedema in palliative care. Br J Community Nursing, 13(Sup5), pp.S4-S9.

Mental Health Research

Butterworth, S. Singh, SP. Birchwood, M. Islam, Z. Munro, ER. Vostanis, P. Paul, M. Khan, A. and Simkiss, D. (2016) Transitioning care-leavers with mental health needs: ‘they set you up to fail! Child and Adolescent Mental Health

Casey, D. Brown, L. Gajwani, R. Islam, Z. Jasani, R. Parsonsm, H. Tah, P. Birchwood, M. Singh, SP. (2016) Predictors of engagement in first-episode psychosis Predictors of engagement in first-episode psychosis

Hovish, K., Weaver, T., Islam, Z., Paul, M and Singh, SP. Transition experiences of mental health service users, carers and professionals: The TRACK study. Psychiatric Rehabilitation Journal , 35(3), pp.251-257.

Islam, Z. Rabiee, F. and Singh, SP. (2015) Black and Minority Ethnic Groups’ Perception and Experience of Early Intervention in Psychosis Services in the United Kingdom. Journal of Cross-Cultural Psychology

Islam, Z. Ford, T. Kramer, T. Paul, M. Parsons, H. Harley, K. Weaver, T. McLaren, S. Singh, SP. (2015) Mind how you cross the gap! Outcomes for young people who failed to make the transition from child to adult services: the TRACK study. BJPsych Bulletin, 1-8, doi: 10.1192/pb.bp.115.050690

McLaren, S. Belling, R. Paul, M. Ford, T. Kramer, T. Weaver, T. Hovish, K. Islam, Z. White, S. Singh, S. (2013) ?Talking a different language: an exploration of the influence of organizational cultures and working practices on transition from child to adult mental health services. BMC Health Services Research, 13(254), pp.1472-6963.

Paul , M. Ford, T. Kramer, T. Islam, Z. Harley, K. Singh, S.P. (2013) TRACK: Transfers and transitions between child and adolescent and adult mental health services. British Journal of Psychiatry, 202(54), pp.36-40.

Singh, S. P. Paul, M. Ford, T. Kramer, T. Weaver, T. McLaren, S. Hovish, K. Islam, Z. Belling, R. White, S. (2010) Lost in transition: a multi-perspective study of process, outcome and experience of transition from child to adult mental health care (TRACK). British Journal Of Psychiatry 197(4),pp. 305-312

LOROS, Groby Road, Leicester LE3 9QE