Thinking Ahead

Exploring and understanding experiences and decisions in end of life care planning with patients and families from Black, Asian and Minority Ethnic backgrounds.


Thinking Ahead Study

April 2021 Update

August 2020 update

Professor Christina Faull, Chief Investigator for the Thinking Ahead study NIHR HS&DR programme project 17/05/30, talks about how the study has progressed and is seeking new participants for the next stakeholder phase in autumn 2020.

The study

The 30 month National Institute of Health Research funded study aims to provide a better understanding of the needs of BAME patients and their families when they become very ill.

Previous research undertaken by LOROS Hospice and others suggests that patients from BAME communities access end of life care less and later than other sections of the population, and that clinicians may lack confidence in supporting them.

The findings will be used to train doctors and nurses in how to support patients more effectively at the end of their lives in line with their religious, spiritual and cultural values.

Researchers will engage with patients from a diverse range of backgrounds as well as their families, care-givers and health professionals across Leicestershire and Nottinghamshire. The study commenced on 1st November 2018.

We will be posting updates on the project so check back regularly to see our progress.

LOROS, Groby Road, Leicester LE3 9QE