Sawubona (I see you) – Promoting equity through research in palliative care

We were so proud to host, in conjunction with Hospice UK and The Good Grief Festival, the first Sawubona virtual conference on the 24th April 2024. 

Dr Zoebia Islam, Deputy Research Lead at LOROS Hospice and Associate Professor in Palliative Care and Frailty at the University of Leicester, chaired the event, which had approximately 200 registered delegates.

Please see below the links to the recorded sessions from the event.   We have added a timings guide for you to help you navigate the sessions.

 Video 1

00:00 COVID-19: Implications for Ethnic Health and the Healthcare Workforce

Professor Manish Pareek, Chair in Infectious Diseases, Director, Development Centre for Population Health, University of Leicester.

36:26 Bereavement

Chair: Dr Lucy Selman, Associate Professor in Palliative and End of Life Care, University of Bristol.

Debi Lewinson-Roberts, Co-researcher at the Palliative and End of Life Care Research Group, University of Bristol - Experiences of grief and loss in Caribbean communities: Community conversations and in-depth interviews.

Dr Olly Clabburn, University of Bristol, with Sherin Begum (Lead Counsellor) and Asma Sharif (Bereavement Project Co-ordinator & Counsellor), Community Care and Wellbeing Service, Cardiff- Learning from each other: Bereavement support in ethnically diverse communities in Wales.

1:23:01 Coproduction research with community co-researchers

Chair: Dr Marie Clancy, Senior Lecturer, Academy of Nursing, University of Exeter.

Professor Gurch Randhawa -Keech End of life research partnership NET work (KEEPNET) - Bringing people together to identify research that can improve end of life services for ethnic minority communities in Bedfordshire, Hertfordshire and Milton Keynes.

Dr Faith Tissa (Newcastle University) - Support in the care for one’s own: Diverse experiences of end of life care in dementia.

Rekha Vijayshankar, Deputy Head of Quality and Clinical Governance, Marie Curie -  The Celebrating Life Project: Voices from resource-poor minoritised communities in North London.

Video 2

00:00 Keynote Speaker Ethnic disparities in rates of opioid prescribing for cancer pain in the UK: Findings from an observational cohort study

Professor Jonathan Koffman, Professor of Palliative Care and Associate Director of the Wolfson Palliative Care Research Centre.

45:58 Exploring opportunities and learning pathways to reduce inequity in palliative care

Chair: Professor Christina Faull, Consultant in Palliative Medicine & Academic Director and Research Lead LOROS Hospice.

Dr Marie Clancy, Senior Lecturer, Academy of Nursing, University of Exeter- Coproduced poetic inquiry in refugee health research.

Dr Zoebia, Deputy Research Lead LOROS Hospice and Associate Professor University of Leicester- Sawubona! Supporting health care professionals to make end of life care accessible for all.

Dr Sabrina Bajwah, Clinical Senior Lecturer, King’s College London and Honorary Consultant Palliative Care King’s Health Partners - Palliative Care- shifting the focus from equality to equity.

1:22:05 Importance of Shahada (declaration of faith) in end of life care planning for Muslim patients

Public Speaker: Irfhan Mururajani

1:43:24 Closing Remarks

Camilla Barrow – Director of the Centre for Excellence (Palliative and End of Life Care) LOROS Hospice.

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For further up to date information on the Sawubona Forum, The Good Grief Festival, Hospice UK, and the LOROS Centre for Excellence, follow us on X.

@Loroseducation @GoodGriefFest @hospiceuk

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