All our research is informed by discussions with patients and carers. If you would like to be part of this we would like to hear from you.
We work in close partnership with the University of Leicester and with research teams from many other Universities and NHS organisations, locally and nationally.
We welcome being part of new projects that will improve the care of patients and families and the skills of staff that support them.
I feel like the circle is complete, it’s the end of this chapter and I’m so grateful to LOROS for helping to make this happen.Pete
The support from LOROS went way beyond what I expected. It really kept me going.Anni
Piecing it Together: Unveiling of the artwork
On Saturday 7th October 2023, the 'Piecing it Together' artwork was unveiled at Haymarket Shopping Centre. It will be available for public viewing over the next year.
Our research 2022-23
It has been a very busy year! We've been working to support diverse ethnic communities, looking at new ways of supporting frail people in care homes and acceptance and commitment therapy for people with MND. Learn more about our work at LOROS and with the University of Leicester in this report.
Muslim perspectives on end of life care
On 21st February 2022 Dr Mehrunisha Suleman, Director of Medical Ethics and Law Education at the University of Oxford, gave a powerful talk about Muslim Values and End of Life healthcare decision-making. There are 2.7 million Muslims living in the UK and there is going to be a doubling of those over 65 years of age in the next decade or so. Little is known about their views on end of life and/or end of life care services.
2023 'Closing the Gap' East Midlands Palliative Care Research & Audit
The annual East Midlands Research and Audit event on 26th September 2023 was attended by a record number of clinicians, researchers and the public representatives involved in our research. You can see the programme here and watch the presentations.
Dr Laura Green, lecturer and programme director in nursing at University of Manchester, delivered her ethnography research at LOROS’s annual lecture on Tuesday 28th February. Laura specialises in palliative and end-of-life-care.This lecture focused on Laura’s PhD project which explored iatrogenic suffering in older people caused by the system, and professionals in hospitals. Over 100 people registered for the lecture which was attended by health care professionals, volunteers, students, and members of the public.
BBC Radio Leicester Make a Difference Awards Finalists
Dr Zoebia Islam’s and Irfhan Mururajani’s Thinking Ahead project made the finalist list in “The Together” category by BBC Radio Leicester’s Make A Difference Award. They were presented with a nominee award to celebrate their achievement and commend their fantastic work.
RED 4 Research
Red 4 Research unites individuals and groups engaged in research, participants, and researchers themselves. Friday 16th June marked the date in which remarkable teams operate both on the forefront and in the background. At LOROS, we celebrated Red 4 Research in style with a bright display at the hospice, an opportunity to win prizes, and staff wore bright red to commemorate the day!
Dr Fawn Harrad has been awarded a prestigious fellowship by the Foundation for the Sociology of Health and Illness.
Final report for the Thinking Ahead study is published
The Thinking Ahead study explored with patients and families from diverse ethnic backgrounds their experiences and decisions concerning the future and planning for deterioration and dying. The stories on this page are fictional but they are based on the experiences and thoughts of the participants.
Piecing it Together Project
As a result of the Thinking Ahead project, we need to work with ethnic minority communities to have more understanding about end of life and the choices available to them. In this project we worked with young people to discuss why dying matters to them.
Sawubona: I see you
One key finding from our Thinking Ahead study was the importance for people from diverse cultural and faith backgrounds to be understood and respected.
Learning sessions for family supporting someone with advanced illness
LOROS is working with the Carers Centre and other organisations to provide information to empower family members who care for someone with advanced illness.
Just-in-case medications at home
We asked 100 bereaved relatives about their experiences of these injectable medicines.
"It's a great ideas but challenging to implement effectively."
Hospices have the potential to support patients to donate eye tissue
LOROS was one of 8 places involved in research led by the University of Southampton which found that there is great potential for patients who die in a hospice to donate corneas to save the sight of others.